Tuesday, April 26, 2011
Monday, April 25, 2011
Sunday, April 10, 2011
kinley had speech again on thurs. she still is resisting participating in therapy but by the end of the session she was doing great! we came home and worked on more of her words! she also figured out how to say "papa". with apraxia it is not that she can do it 100% of the time, but she is getting better and better with it. we are so proud of her and how hard she is working!
Monday, April 4, 2011
wow...what a day! kinley went back to school after being on spring break last week and then we headed straight to childrens for her speech therapy. it made for a busy day for kinley! therapy went okay. i knew it was going to be difficult, but i guess i didn't really grasp how hard it was going to be. i am hopeful that with time we will get into a routine and hopefully kinley will enjoy it more. right now she is just frustrated that the words are not coming out and she just resists. mary lou our therapist is amazing and was great at working with kinley and keeping her interested. for only being 3 years old and having been at school all morning and then going right to speech she really did amazing!
we started the session making kinley's "functional word book" i brought pictures of some people we wanted kinley to learn to say. so we had a picture of daddy, mommy, kya , kinley, wilson, gaga and papa. we have more pictures to put in but today we just started with these. mary lou then did some color coding in the letters below the words and added pictures about each letter helping kinley to know lip placement, voice on or off ,& breath on or off. it is great to learn the concepts behind it all. we then worked on some more articulation testing and then moved on to the "sound of the week notecards". this week we are working on the sound "h", so we made 5 notecards with pictures for kinley to work on. marylou also worked with me on how to help kinley with her tongue to make the sounds "k" and "g". kinley is having trouble keeping her tongue down. it was amazing how just helping kinley with her tongue and she was able to say those sounds! it was such a blessing hearing kinley say "k" for the first time ever!
the lows of therapy is mary lou confirmed that kinley's apraxia is severe... but she also said she sees so many things promising about kinley that will help her. she said her personality , her spirit, and her intelligence is going to help alot! she said we have a very long road ahead but to keep positive! we got home and we probably worked for another couple hrs on and off on kinley's book and her notecards. there were moments i think we both just wanted to throw it out and run! i had moments i had tears of sadness watching my baby struggle so much, moments of joy, moments of frustration, moments of being scared, moments of surprise, moments of defeat and in the end we fought hard and it was a WIN!!!
here is a peak from some of our HARD WORK TODAY!! i am so proud of kinley and how hard she is working! way to go kinley !
Sunday, April 3, 2011
it was an amazing weekend! kinley has really struggled to say dada...so mark has been so patient and has been called mama by kinley :) we have been working on it for over a year and it has just not come...the message was just not coming through. a couple weeks ago we taught kinley the sign language for dada and for mama. it was then that she started to attempt to say dada. this past week we have been putting into practice some of the new techniques from kinley's new therapist and it WORKED! with apraxia it is not that kinley does not know how to say dada in her sweet head...but for some reason the message is just not carried into motor planning in her mouth. the great thing about kids is their brain has something called "plasticity" (a term we learned about this week). that means they are changeable and respond to incoming stimulation. Neural pathways can actually be created as a result of stimulation!!! AND praise the LORD for this ...cause look what kinley learned to say this weekend!!!
let me just tell ya how many tears were falling when these sweet words came out LOUD AND CLEAR! her daddy was feeling on the top of the world!!!
on sat at kya's soccer games...some of our dearest friends and family were there..and we said..."kinley tell them what new word you learned" and she said dada...over and over! it was so cute all our friends and family started cheering and again more tears shed!! it was soooo amazing to share this moment with some of our amazing support system! through the prayers of many of these people....our prayers were answered! thank you all..keep the prayers coming they are WORKING!! i can't wait for LOTS of more videos to share!