so i am aware it has been a month since i have blogged. i am hoping to have a lot more information next tues, but recently we have found out that kinley most likely has developmental apraxia. it is a neurological issue where they have all the words in there heads but do not have the motor planning to actually get the words formed. we have spent A LOT of time, praying, educating ourselves, talking to insurance companies, therapists, and just processing what this means for us as a family. there is a chance kinley may never be able to verbally communicate, but most kids with INTENSIVE therapy can get to a level of communication and some even get to a point that most would never know the person even had apraxia. at this time we have no idea the severity of kinley's apraxia. we go into children's for our formal evaluation and will hopefully get a lot more clarity and information. kinley also has sensory integration disorder which can complicate her apraxia. please keep kinley and our family in your prayers. we trust God has a plan for our sweet girl! she brings so much joy to our lives! thank you for all your care and concern for our family during this process! Friday, March 11, 2011
what we have been up to....
so i am aware it has been a month since i have blogged. i am hoping to have a lot more information next tues, but recently we have found out that kinley most likely has developmental apraxia. it is a neurological issue where they have all the words in there heads but do not have the motor planning to actually get the words formed. we have spent A LOT of time, praying, educating ourselves, talking to insurance companies, therapists, and just processing what this means for us as a family. there is a chance kinley may never be able to verbally communicate, but most kids with INTENSIVE therapy can get to a level of communication and some even get to a point that most would never know the person even had apraxia. at this time we have no idea the severity of kinley's apraxia. we go into children's for our formal evaluation and will hopefully get a lot more clarity and information. kinley also has sensory integration disorder which can complicate her apraxia. please keep kinley and our family in your prayers. we trust God has a plan for our sweet girl! she brings so much joy to our lives! thank you for all your care and concern for our family during this process! 
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7 comments:
Lord have mercy and guide you! She is in my prayers often...
Wish i had life-changing words to give your hearts rest and joy in such a time as this... but instead I will just tell you how much our family loves your family and how if there is anything at anytime that you might need, please don't hesitate to ask. We sure do love you guys to pieces and are so blessed to walk through this life with you. :)
I just wanted to tell you that I are praying for your princess. I also wanted to let you know that we see one of the best Aug Comm therapists in the nation and would love to give you info on that if you would like.
There is also a family camp going on in April through Children's, Easter Seals, and Shriner's for kids with all different kinds of speech issues that may be worth looking into as a source for a lot of info from very skilled professionals and parents in speech and communication.
I have much hope that words will come in time and will continue to pray!
Brooke, you are in my prayers. Asher has been in speech therapy his whole life. I know that the journey is tough and I will pray that there will be joy along the way. You are an amazing mom and Kinley is so blessed to have you as her mom! What a blessing her life is!
You are such an example of strength. I know this is a really trying time right now. Your faith is such an ispiration to our family and we love you so much. We will continue to hold you close in our hearts and lift you up in our prayers. There is purpose in everything. Love you so very much.
Praying for you guys.
Hi Guikema's,
Praying for Kinley and for the answers to all your questions. We are thinking about you guys here in Wisconsin. Your faith is so strong and God is good. Thanks for keeping us posted. Mary Velier
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