It is a better day...and that is a nice change of pace. Life has definitely been a little different over the last 3 weeks. The steroids have started to kick in, and that is good and bad. The good news...some of the secondary symptoms of sarcoidosis are reduced. Less night sweats, some relief in my chest, fewer coughing fits, and general momentum in the right direction. The bad news...my temper is shorter, I am developing "moon face" - which is really cool, I have some trouble sleeping - thank you meds, nausea, my heart pounds out of my chest, and I think my brain function is decreased, but maybe I am just a little more distracted by all the goings on. Sweet.
It is a slow process. Like I said, today is a better day, but I have had to come home early from work a couple times for naps, my energy level is way reduced, I need to take a break after fast walking through a sprinkler with my 3 year old twice, two flights of stairs is too much, and I just can't do much at all. God is working on my patience. I can't stand watching life go by with my wife and girls as I am too tired to take part. Brooke mows the lawn, takes care of me, does everything for the girls, cleans out the trailer, runs the errands, builds the patio, and on and on, and I sit on the side. There have been a couple days where I try to do anything and Brooke tells me I turn green. Awesome.
God is strong in my weakness. Apparently, my weakness may to last for a while. The doctor has said that it may be 2 years before I feel relatively back to normal based on the amount of stuff that was going on in my chest and lungs. We go to National Jewish Hospital on May 28 for more information on sarcoidosis and what life may look like. I also get to go to the eye doctor on June 11 for an evaluation. I have been told that I need to have the opthamologist on speed dial in case I lose color or start seeing spots. Joy.
But like I said, today is a better day. I walked 5 flights of stairs at work (don't tell Brooke) with a little break, I was able to help with dinner (gourmet hot dogs and broccoli - I love grilling in the summer - thanks Todd and Joe for the Omaha Steaks - I had no idea how good hot dogs could be), and I even got to water plants tonight (I know mom would have been proud). I'll take days like today. It was better than yesterday, and that's how I know God is working in me. Little by little, he is helping to change me, both my health and my heart. I am grateful today for my family, and especially my amazing wife, and the love and support they give. I am indebted to those who have helped me in many ways. And I am looking forward to tomorrow and what it brings. Good.